vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Unsleeving my cards for the Fellowship of the Ring trick-taking card game. Had sleeved them cos I'll be shuffling these a lot. But my neuro illness hands struggle with them sleeved - too slippy, too bulky. So unsleeved it is. Feels like right step even if backwards!

All the removed sleeves are now back in their packet, beside those I hadn't sleeved onto cards yet. I may yet change my mind. Or might want to use the sleeves for something else. But I'm confident they're better not used here. At least for me.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
My annual post about Rare Disease Day. A bit more verbose than in some recent years, with lots of links to further thoughts from me about related topics.
vivdunstan: Photo of some of my books (books)
Very recently I replaced my rapidly dying old Kindle Paperwhite 4 with the latest model. And a few days on I thought I'd post some quick thoughts.

On plus the new one (Kindle Paperwhite 6) is much much more responsive for page turns. This makes a huge difference to me since I read with a gigantic font for disability/neurological illness reasons. So have to turn pages much more than most folk for the same amount of text. In the old model there was a noticeable delay each time. Now it feels almost instant. Which I'm very happy with.

It was also remarkably easy to set up, using my iPod touch (like an iPhone, but without any phoning) to send by Bluetooth my Kindle login details and wifi network. Which sounds a bit risky as I write this, but worked ... And then I just had to tweak the font size, screen layout and brightness to my preferences, and I was done.

On the downside the new Kindle Paperwhite uses a different transfer protocol (MTP) which is not Mac friendly. So if connecting it up via USB there are extra hurdles to get eg a screenshot off. Which I do rarely. But still. It also affects side loading ebooks onto it by cable, though you can also upload them via web and email.

Also the Kindle Paperwhite 6 is a little bit bigger than my previous Kindle Paperwhite 4. It's not too big for me to handle, but felt a little unfamiliar at first.

I really like the plant-based cover I got, the official Amazon version. It's not fully plant-based, but much more so than the standard cover. I picked it partly for that reason, but also because it got better reviews for softness and no sharp edges than the main alternatives.

Big relief I don't have a yellow band at the bottom of my screen. This has been a problem for many latest Paperwhite owners as well as the new Kindle Colorsoft model. I am mightily relieved.
vivdunstan: Photo of some of my books (books)
Setting up a new Kindle Paperwhite to replace my rapidly dying old one. Main priority is change font and layout to be friendly for my progressive neuro illness challenged brain. I can read small print in eye tests, but for extended reading find large print vastly better. Big before/after difference!

Brain damage from my progressive neuro disease is why I struggle so much with normal print books now. When I did my PhD on historic Scottish reading habits I was phenomenally envious of many readers I studied and the books they read! Empathised with those who no longer could through age or disability.

vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Just caught up with Homer translator Emily Wilson chatting yesterday at the Edinburgh Book Festival. I studied both the Iliad and Odyssey as part of my Open University history/classical studies BA(Hons) degree 1998-2000. A very part time degree, but one that was greatly shortened thanks to credit transfer from my St Andrews BSc(Hons). Which meant I could leapfrog the first year's courses. Though that made it a much harder transition from studying hard science to studying humanities at degree level!

I was using Richmond Lattimore's translations of the Homer poems in my OU degree. I have a vivid memory of one night we'd driven over to Dundee, and Martin was nipping into supermarket Asda, with me waiting in the car. And reading the Iliad, full of hefty anatomical descriptions of battle injuries. And desperately wanting to read out some of them to him when we came back! I haven't read Emily's new translations yet, but hope to, health permitting. I did have her hardback Odyssey book for some time, but struggled too much with it due to my neurological illness. I may yet get the Kindle versions to read, with a gigantic font I need now.

The book festival chat was interesting. Emily was a very good speaker. Though the lady interviewing her talked far, far too long between Emily's bits. At one point Emily was repeatedly struggling to get a word in. And also, very frustratingly for the online audience, the interviewer totally ignored the many questions that had been typed up online to be asked to the speaker.
vivdunstan: Photo of some of my books (books)
I just wrote up my experience watching masses of Cymera 2024 on streaming.
vivdunstan: Some of my Doctor Who etc books (drwho)
I posted the quoted text below in a comment on a friend's thread, but I think it's worth reposting here. BBC Children in Need's TV show on Friday night included a 5 minute scene, featuring the Fourteenth Doctor meeting an able bodied Davros at the creation of the Daleks. Many watching like me assumed this was a pre-injury Davros version. Possibly, but in the Doctor Who Unleashed documentary later that night Russell T Davies said this is how Davros will be shown in the programme from now on: not a wheelchair user, and able bodied. This was a deliberate decision to redress problems in the series's representation before, including the evil cripple trope. However the response has been mixed, and not just among ardent Davros fans.

Here's what I said in a comment earlier today:

Re RTD and Davros the response has been quite mixed on the Gallifrey Base Doctor Who forum. Including from wheelchair users like myself. Yes some have experienced or witnessed bullying inspired by Davros and are concerned by the evil cripple trope. But others found RTD's words in the Doctor Who Unleashed documentary patronising and virtue signalling. One father also wrote about his daughter (11 or 12 years old I think) who is a wheelchair user, and was extremely upset by what RTD said and this change. She had always found Davros a strong character to look up to. And I think it's fair to say that one of the worst offenders in this area in the past has been RTD himself. Which makes his about turn understandable. But doesn't stop it being viewed by some wheelchair users as patronising and unwelcome. So it's complicated.

People have also been giving feedback on RTD's Instagram post, including more parents of now very upset disabled children. And to be honest his responses have often been really rude. My views on this whole issue are definitely "complicated". But it's fair to say that RTD's words and his reactions on Instagram have not exactly endeared him to me this weekend.
vivdunstan: Fountain pen picture (fountain pens)
Most probably on my academic blog for my occasional musings:
  • (long overdue) on ethnicity DNA tests (I have strong thoughts!)
  • 19th century Scottish passport records
  • the tentatively titled “Bookshops as alienating ableist spaces? Thoughts as a reader with progressive neurological illness reading difficulties.” - that one might prove quite provocative ...
It's a really good sign that I am thinking of writing these soon, a good sign that I'm recovering more and more. Though it may take me a while to get to them, I do now have a to-do list of blog posts to have fun writing. I hand draft blog posts with a fountain pen, then quickly type them up, very quick edit and post. I find writing by hand generates a freer sense of content than if I type. I usually surprise myself with what I come up with.

I am also hoping soon to get going on IFComp games. But at the moment, apart from some awake time at night, I am just asleep.

Rest room

Sep. 15th, 2023 09:22 pm
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
(As in a room to go and rest in, British meaning, not the US meaning of a toilet)

Was reminded by a post today on Facebook from a uni friend about the “rest room” in Dundee University’s main Tower building basement, that was an enormous help to me during my postgraduate studies and during the year I was working as a research assistant as well part-time. I was battling my progressive and worsening neurological disease, and it was an enormous help to be able to go into this dedicated room with reclining chairs where I could have a lie down for an hour or so. It’s a little known facility but is especially useful for disabled or long term ill students who don’t otherwise have somewhere quiet to go. I used to always ask at the Tower front desk (usually Muriel!) for the key. But later I got my own key to keep and use. Long since returned.

On ebooks

Jul. 18th, 2023 06:49 am
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Just enjoyed another pair of SHARP book history conference panels. Including a very exciting for me keynote on ebooks versus print books, their readership and perceptions of them. This touched on so many issues important to me, as a reader - and book historian! - who now reads with huge difficulty, and relies on ebooks for gigantic fonts needed for disability reasons. There is so much snobbishness against ebooks, which is also an incredibly ableist perspective. Many of the survey responses discussed in this keynote echoed these exact views, powerfully and clearly. Anyway good stuff. And a fascinating Q&A after.

This is not to say that there aren't problems with ebooks. Academic ebooks for example are a nightmare area in terms of cost and books often suddenly vanishing from those available for students and lecturers to use. There are also big concerns re the dominance of Amazon and their tax dodging habits. But for many disabled readers ebooks are life changing. And it's not surprising many like me get angry when this is so readily overlooked.
vivdunstan: A picture of a cinema projector (films)
Too ill to sleep much, not well enough to sit up and work on my laptop. So glued to the bed, but just managed to rewatch the first Tobey Maguire Spidey film. All of it! Enjoyed it, though it’s far too gloomy lit for much of the time. Tobey Maguire is also often overly flat in his delivery. I was pleased to notice a wheelchair user having a fairly prominent repeating role. Surprised at the homophobic joke in there though. Checking I see it’s been cut out of some more recent repeat airings. Willem Dafoe was excellent, though the Green Goblin was a bit too over the top. Oh and nice to see Octavia Spencer in a brief part.
vivdunstan: Photo of some of my books (books)
I mention from time to time my reading problems with print, despite being a book historian with a PhD on reading habits. Here’s an illustration of how I read with eBooks, with my Kindle on top of a print copy, same section in both. The Library book by ‪Andrew Pettegree‬ and ‪Arthur der Weduwen‬. This is quite extreme, but means that despite the brain damage from my progressive neurological disease I can continue to read enthusiastically and in huge quantities, both fiction and non fiction. But print is an enormous problem for me to manage now, and increasingly so.

vivdunstan: Photo of my 72 bass accordion (accordion)
One really lovely thing about my accordion practice this afternoon is my right hand - and specifically my fingers - was cooperating really well. This is the hand that plays the melody on the piano keyboard side of my accordion. When I had a huge cerebral vasculitis relapse in 2004 (effectively a stroke) I was suddenly a lot weaker down my right side, and falling over a lot to that side. I regained a lot of hand/finger control by teaching myself an enormously difficult piano tune over the next 12 months. But many years on I'm still weaker down that side than I'd like. And especially during disease flares/relapses. A year or so ago I was very sad about it, fearing I was losing the ability to play completely. Well things are looking a bit better at the moment! I still have other neurological things to contend with accordion wise, like light headedness, falling asleep mid play (!) and losing my usually automatic bellows control. But honestly it's so much better than it might have been. So I expect I should be able to enjoy playing my accordions for some years to come. Which is just lovely.
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Feeling saddened reading about an upcoming history conference, that is going to be totally face to face, with no plans at the moment to stream anything. Given how knocked out I am, very unpredictably, I don't feel able to ask for specific things to be live streamed for me, even though there is an invitation there. The programme looks superb. But it just makes me feel we are stepping back to the elitist face to face situation, which discriminates against disabled academics like me. And also anyone extremely high risk who isn't happy attending a face to face event in what is still an ongoing pandemic.
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Been taking part in an interesting Twitter thread today about the problems faced by non affiliated or barely affiliated academics, essentially independent scholars without university support, including financial. It digressed slightly into different funding arrangements for postgraduates. I remembered how during my Dundee history PhD (2003-2010) many Scotland-wide PhD training events were for a long time only open to funded PhD students. I was initially unfunded for my history PhD, but later won AHRC funding. Even then as a part timer I got no stipend, unlike full timers. My PhD supervisor campaigned with others to get AHRC to provide stipends to part timers. This happened in time for me to benefit before the end of my PhD. As a part timer I was also initially ineligible for the Disabled Students Allowance, which at that time could only go to full timers. Fortunately that changed too. To be fair this is a long time ago, and much has changed. But still.

I could also go off on one about the poor support for me as a computer science PhD student from EPSRC when I fell long term ill. But that’s another story ...
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
For #VasculitisAwarenessMonth here’s my blog post about living with an invisible and fluctuating neurological illness. This year is the 25th year since I developed cerebral #vasculitis, then aged just 22.

https://vivsacademicblog.wordpress.com/2018/10/21/dealing-with-an-invisible-and-fluctuating-neurological-illness/
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Wow the Open University is 50 years old today! I’ve just blogged about my experiences with it, studying 1998-2000, and how it gave me a second chance after I fell long-term seriously ill as a science PhD student at just 22. Posting here for a feel good story! The Open University is a much venerated UK university, that set out from the start to support part-time distance learning at home, giving people a chance who might otherwise be unable to study at university level.

https://vivsacademicblog.wordpress.com/2019/04/23/celebrating-50-years-of-the-open-university/

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vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
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