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Rare Disease Day 2025
Feb. 28th, 2025 09:59 amMy annual post about Rare Disease Day. A bit more verbose than in some recent years, with lots of links to further thoughts from me about related topics.
Rare Disease Day 2024
Feb. 29th, 2024 10:36 amIt's Rare Disease Day again, and time to reshare my experiences with a 1 in a million (literally!) progressive neurological disease, cerebral vasculitis. I've written a lot about it before, but I think my "Implications of living with a rare disease" blog post is a good one, which also addresses the experiences of other people living with other rare diseases.
Rare Disease Day
Feb. 28th, 2022 02:59 pmToday is #RareDiseaseDay2022 I’ve lived for 27 years with a 1 in a million neurological disease, primary cerebral vasculitis. Here is my blog post about some of the implications of living with a rare disease. #RareDiseaseDay
