vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
As I say on my profile page I mainly use this blog to keep track of dosage changes and symptom patterns/progression in my neurological disease. Those entries are restricted to family only.

I do post more widely though. Many early entries are friends-locked. If you know me, either in person or online, feel free to friend me.

But some entries will be on more open access, especially those I link to from Twitter.
vivdunstan: Photo of some of my books (books)
Ok a few changes since last time. I've three rereads on the go, one for fun, one for my book club, and one for - yes well fun too - an annual pre Halloween tradition.

I'm also newly reading the poems book, in print. And continuing to slowly read The Bookshop Book and the book about the Eleanor Crosses.

This time doing a collage of covers using a collage program I have on my Mac. Which didn't exactly collage them for me, but I was able to drag them about to get the desired result.

vivdunstan: Photo of my 72 bass accordion (accordion)
RIP George Fenton, composer of much film and TV music, including Bergerac, one of my favourite theme tunes. Here's a link to me playing part of it on my piano accordion.
vivdunstan: A picture of a cinema projector (films)
Ordering us the new limited edition 4K+Blu-ray version of The Name of the Rose starring Sean Connery. I've never seen it right through, but should enjoy it. And though we can't play 4K yet we may be able to in future. Apparently the picture quality in this release is very good, with lots of bonus features, and an accompanying hefty book too.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Been checking this afternoon if my body is still suitable for donation to trainee medics and dentists, even after removal of all the reproductive organs, along with the good news no cancer. Yes it is! So unless anything more problematic happens, my body will be going after death to the University of Dundee. As my Dad’s did. Happy with that. I’d set up the donation long ago, signing the necessary paperwork that needs to be completed by the donor.

Bodies can be donated to medical science departments at many UK universities, but this needs to be arranged in advance. After death, if the timing works out, a final decision will be made on whether the body is suitable. And if it is it will help train medics and dentists. I was keen to do this, as was my Dad. Dundee University has a particularly good intake of donations from the local community, who value this work immensely.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Just got a phone call from the gynaecological surgeon with my pathology results. Clear for cancer, so mega woop. Of the two cysts removed, the left one was totally benign, the right one “borderline”, but not cancer. That right one was especially large and dangerous to leave in place, so I’m very glad it’s out. Big relief here anyway. We already had a dinner out booked for this week. It will be a celebration meal now.
vivdunstan: (lord of the rings)
Starting to catch up on my delayed Oxonmoot recording watching with Brian Sibley remembering the 1981 BBC Radio 4 Lord of the Rings which both my future husband in Somerset and me in the Scottish Borders enjoyed listening to as youngsters long ago. The videos are only available on catchup for Oxonmoot ticket holders.

Muting AI

Oct. 4th, 2026 09:09 pm
vivdunstan: Art work for the IF Archive including traditional text adventure tropes like a map, lamp, compass, key, rope, books a skull, and a sigh referring to grues (interactive fiction)
Finally muting the AI tag on the intfiction forum so I don’t see any posts tagged with that now. I’d hung on for ages, but my patience has run out. It will make the forum a much happier place for me to hang out. Note the users of this forum are generally very against generative AI in creative work.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Am now at the stage of recovery where I can have my laptop in its usual position, and not feel achy or uncomfortable after a short time. I've also just booked us a dinner out next week, to see how I cope with that. I am eating nearly normally. Next after that is go see the Jacobites in Angus exhibition at Montrose Museum, to see how I cope with the half hour drive there, outing, and back. Progress.

Still no news on the pathology results, but it could be some weeks yet before I hear those. Crossing fingers for not cancer obviously. The surgeon was hopeful.

Day 21

Sep. 25th, 2026 05:03 pm
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
21 days post gynaecological surgery, and we've just done the last daily anti-coagulant injection. Martin is going to walk round to our nearby chemist to hand in the sharps bin. And we've also just uncovered the last surgical incisions. I had 6 surgical incisions from the robotic keyhole surgery, and they were slow to heal, unsurprisingly given my severe immunosuppression. As the days have gone on we've slowly uncovered more and more, rather than redressing. But it's taken until today to uncover them all. Some are still a bit scary looking, but no signs of infection. So progress.
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Shock horror! That's our M&S Christmas and New Year food preordered. Vegetarian mains, traditional garnishes (inc chipolatas - we've a flexible diet!), and sweet treat. That'll feed us for 25, 26 Dec & 1, 2 Jan. Yes it's early, but we left it too late one year, and they'd sold out of what we wanted.

To be picked up from the Broughty Ferry M&S Food Hall.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Just phoned the health centre to see if they had the results of my latest blood test yesterday. Yes, and my kidney function is now normal. So my kidneys have recovered their full function after the major shock they took from my prolonged surgery. So relieved. I didn’t need long term kidney damage on top of all my other problems. Will tell Martin shortly. He is driving the car home from its MOT and service.
vivdunstan: Photo of some of my books (reading)
Yes it did feel like time to start yet another reread of Lord of the Rings! All the books in the picture are in progress, with percentage marks showing how far through I am on most of them.

Screenshot of a greyscale Kindle Paperwhite in portrait mode, showing 6 book covers in progress. On the top row first is a bundle of Lord of the Rings books, with Fellowship at the front (as a bundle it doesn't show percentage progress); "Venice" by Jan Morris (60% through); and "Cranford" by Elizabeth Gaskell (57% through). On the row below that are another 3 book covers: "The Sex Column and other misprints" by David Langford gathering his old columns in SFX scifi magazine which had a running joke of partially covering the F of SFX to make it look like another word (70% through); "The Bookshop Book" by Jen Campbell (26% through); and "Eleanor: a 200-mile walk in search of England's lost queen" by Alice Loxton (3% through). The covers are varied, including Venetian architecture, lots of bookshelves, and a rather confused looking standing spermatozoon on the SFX (not SEX!) book.

Injections

Sep. 19th, 2026 05:39 pm
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Down to just 6 of 21 anti coagulant injections left to go, so I’ll be done by Friday. Martin’s not keen on needles, but has proved very good at injecting. Though my upper thighs are, inevitably, covered with bruises. We were given a sharps bin by the hospital to put the used injections in. That will be handed in to our local chemist after we’re finished. Very possibly when I’m at the neighbouring health centre if my repeat repeat kidney function test this coming week is still too low and they ask me to come in again the following week!
vivdunstan: Warning sign re risk of being mobbed by seagulls (dundee)
Martin managed a brief bit of birding on Monifieth seafront today, while returning my expired (and replaced/renewed) disabled parking badge to the library to go back to Angus Council.

Here’s one of his photos, looking towards the lighthouse at Buddon Ness. Yes we do live by the seaside.

vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
One of the best signs of progress in my continued recovery after surgery is that my temperature regulation has finally stabilised. I was struggling with constant swinging hot waves, chills and feeling clammy in the days and first week after especially. Had no signs of an infection, and my other stats were good, but temperature regulation was bonkers. Not due to my ovaries being removed - I was already post menopausal and off HRT. Just the shock of the major surgery. But good now. Two weeks ago at this time I was under the surgeon’s knives, over three hours through a five and a half hour keyhole operation. Seems like an age ago.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Currently feeling much more comfortable, but having to be very careful to sleep/rest as much as possible, and avoid doing anything that encourages pain/twinges/bleeding. I've a 4 week or so recovery period remaining ahead, and that's the same time scale until I learn if what was removed was cancerous and thus more treatment is required. Recovery has been a bit of a rollercoaster, and very scary early on. But we're getting there. I'm down to just 8 days left of the 21 anti coagulant injections, and hope to uncover more incisions soon - the rest are staying freshly redressed after every bath. My eating is improving every day. My kidney function is still too low post surgery, but that is being monitored by the GPs, with yet another repeat blood test next week. But yes, have to avoid ouch inducing things, which often includes using my laptop for more than 5 minutes a day. Luckily I am very skilled at sleeping!
vivdunstan: The 15th Doc swirling round on the dance floor in his kilt (fifteenth doctor)
Here's the BBC newly published invitation to tender for Doctor Who. Lots of interesting details in there about how they're envisaging future production.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Got a call from the health centre. My kidney function as tested yesterday is still too low so the GP wants it retested next week. That’s fine, and hopefully by then I will be more comfortable going out. Might get to chat to the nurse daughter of our next door neighbour this time. The hospital discharged me a little reluctantly on 5th September because my kidney function was too low, and they asked the GP to retest a week or so later. So now I get a retest retest 😜
vivdunstan: Photo of some of my books (books)
Catching up with this, though my reading has a bit on hold in the immediate run up to surgery and since.

    ( earlier books )
  1. Virginia Woolf's Orlando: A Graphic Novel Biography by Jules Scheele
  2. Sir Sherlock: The Red Letter Day by Kenton Hall
  3. Theodora's Tea Shop by Christy Anne Jones
  4. Nogmania by Oliver Postgate and Peter Firmin
  5. The Spellshop by Sarah Beth Durst
  6. Venice: City of Pictures by Martin Gayford


The Orlando graphic novel version was a read for book club, opted for after I struggled too much in my scared pre-surgery brain to have the patience for a reread of Virginia Woolf's original novel (I last read it in the early/mid 1990s). The graphic novel version is a good adaptation, great visuals, neatly condensing plot in places. Quite a treat, and just published recently.

I'm buying each Sir Sherlock audio in the new series starring Doctor Who's Tom Baker and John Leeson as Holmes and Watson, and also treating myself to the hardback novelisations. Sometimes you get a little extra in the book, or audio, or vice versa. The series explores an older Sherlock Holmes, with a new core supporting cast. This was the first story, and nicely done, with a mystery involving the British Museum, and an intriguing callback to Holmes's past.

I follow Christy Anne Jones on YouTube - an Australian writer and content creator who I find very inspiring - and I read her recently published debut novel, a 1920s inspired fantasy. In many ways with a feel of Harry Potter, but darker, and not the cosy fantasy that at least the UK publisher Headline has rather mispromoted it as. For a debut novel it was really strong, even if it slipped a bit in the third quarter. But I was still wowed, and not just as a long-time YouTube fan. I was able to pick up an independent bookshop signed copy from the Broughty Ferry bookshop.

I picked up the Nogmania book, published in 1977, after learning about it through the recent auction of Peter Firmin artworks. It's a bonkers book, full of Heath Robinson style large-scale inventions for the Noggin the Nog Viking world. Just joyful. I'm so glad I managed to get a copy secondhand, and also at a hefty discount. It's a rare and much sought book now.

The Spellshop was the cosy hug I needed before surgery, set in a fantasy world, where a librarian fleeing disaster tries to rescue magical library books, as well as find her place in a new home.

I was reading the Martin Gayford Venice art history book for months, slowly. But it was really good, and I learned so much. On the downside the illustrations only really work in the hardback copy - not the paperback, where they're heavily reduced, or the ebook version. So I ended up replacing a paperback copy with a hardback, and reading the text on my Kindle. Then now and then catching up gawping at the pictures. It is really well done.

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vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
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