vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Wonderful news from the rheumatologist - just found her letter waiting in the hallway. My latest bone density scan 2 weeks ago in Perth showed that I have improved, going back from full blown osteoporosis 8 years ago to osteopenia, which is like part way between normal/healthy bone density and full osteoporosis. So the strong bone regrowth drugs I've been on ever since 2017 have helped a lot! I am to keep on them though, because I continue to be on a pretty decent daily steroid dose. But that's ok. They are helping. They are a big complication for dental treatment options, because of how they can cause bone death in the jaw, limiting the types of procedures that dentists can safely do. But my dentist is working around them. And we are coping. So yay!

I've been on daily steroids permanently since 1998. Also my periods stopped completely for much of my 30s due to my toxic cocktail of other drugs. Only to resume for a short time after. So my bones have taken a pretty big hit. But reverting from full osteoporosis to osteopenia now is wonderful news.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Could happily have done without one of my appalling choking fits while eating at dinner. They're becoming more frequent. Especially likely when I'm extra confused or overloaded cognitively. But can happen at any time. I'll have to mention them to the rheumatologist next time I speak to her, along with the extremely frequent now forgetfulness and losing things. My neurological disease is progressing more and more with time. But since I've lived with it for 30 years, and we managed to slow it down a lot, I'm grateful to be coping as well as I am.

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vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
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