vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Latest Covid (my 8th) and flu (umpteenth) vaccines acquired. Huge thanks to the friendly and efficient NHS Tayside staff and volunteers at Dundee city centre vaccination centre. Immensely grateful to get this, as someone who is severely immunosuppressed. And is now thankfully generating antibodies.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Just found that this year the shingles vaccination programme in the UK is being extended to include severely immunosuppressed people aged 50 or over. That’s in addition to non immunosuppressed vastly older folks. It’s a two part vaccine given over an especially short period to severely immunosuppressed. And not live, so safe for even immunosuppressed to have. So I can expect that this autumn too. Joy. Hoping I don’t get another neuro flare. Though I want the shingles protection. I’ve had shingles twice, including just before my PhD viva. And I was lucky to survive my only run in with chickenpox as a newly immunosuppressed 25 year old in 1998. I ended up in hospital on drips and in isolation for a week.
vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Today is International Vasculitis Awareness Day. I’ve been living with cerebral vasculitis since age 22 in 1994. Here’s something I wrote about living with an invisible and fluctuating neurological illness. https://vivsacademicblog.wordpress.com/2018/10/21/dealing-with-an-invisible-and-fluctuating-neurological-illness/
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
For over 75s, care home residents and immunosuppressed people like me. That will be Covid jab number 7 for me. And a week after I will almost certainly have another 3 month long neuro illness flare start. I’ve had this happen 6 times already, 18 months of 2021 and 2022. It’s horrific. On plus because I’m severely immunosuppressed the jab could very much save my life. But it’s horrific to cope with repeated flares. At least I am only due 2 Covid vaccines in 2023.

https://www.bbc.co.uk/news/health-64876657
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
This is such a disappointing result for immunosuppressed people like me. Other countries around the world gave Evusheld to their immunosuppressed people a year or more ago, offering them vital protection at that time - which worked - against the then variants. The UK government chose not to, and delayed the decision making process so much in a rapidly changing variants situation that now the much delayed result is no. On plus there is a new version of Evusheld being developed. And on plus NICE has admitted that the current decision making process in such a time critical setting needs to be speeded up hugely. But yup, very disappointing. I am very lucky that I do have some good antibodies finally after 6 Covid vaccines, with a 7th vaccine probably due in the next few months (which will probably cause another 3 month long neuro flare, but ...). But many immunosuppressed people are not so lucky.

https://www.nice.org.uk/news/article/nice-says-no-evidence-that-covid-19-treatment-evusheld-is-effective-in-protecting-vulnerable-adults-against-current-variants-as-it-announces-new-rapid-update-process-for-covid-19-medicines
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Tomorrow NICE who decide what drugs and treatments should be used in the UK will announce whether the preventative Covid antibody treatment Evusheld will be rolled out via the NHS to immunosuppressed people like me who have a reduced response to vaccines. I am lucky I have some antibodies now, after 6 Covid vaccines so far. Many immunosuppressed people still have no detectable antibodies. I am not optimistic that NICE will approve it. But I hope they will. It could help transform the lives of people who vaccines do little to protect. It has been used for these patient groups in many countries but not the UK.
vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
Really shocked at the cost of someone else receiving Evusheld privately in the UK, a preventative medicine against Covid to help immunosuppressed patients, many of whom do not generate any antibodies from vaccines. Unlike other countries the UK is not providing this publicly.

A single treatment of Evusheld lasts 6 months. It would cost up to £800 to the NHS but it’s not approved unlike so many other countries. It’s newly approved privately in the UK, and we’d been told £1000. Well someone I know has just got it. And it’s way way more than that.

£500 for consultation with a private doctor, £1600 for the drug, £160 administration. So about £2400, out of someone’s private coffers and that’s I think for just 6 months protection. This drug could save thousands of extremely vulnerable lives. Normal people can’t afford this.

I’m extremely lucky I’m getting some good antibodies, after 6 Covid vaccines (yes 6!). Though Covid vaccines trigger a devastating 3-month long neurological flare for me every single time. But Evusheld would make me feel safer, and protect others far more. Provide it on the NHS now!

Evusheld could be provided on the NHS to patients at considerably less cost per dose than private providers are selling it to patients directly. Yes it has a cost but for 500K people who are not being protected enough by vaccines and still at phenomenal risk it is needed now.

Here is the blog post by a literature prof outlining the costs and why he went for this.
vivdunstan: Photo of some of my books (books)
Last night I finished two more books, so here are some quick thoughts.

First up Rachel Clarke’s Your Life In My Hands: A Junior Doctor’s Story. I went into this expecting it to be the tale of a junior doctor. Which to be fair it was. But it was also the tale of the junior doctors’ fight against Jeremy Hunt and co some years ago, including striking. That was interesting, but became repetitive after a while, and not as reasoned as I’d like. I found the medical tales of patients and the doctor’s on the job experiences more compelling. Another downside to the book was that it jumped around in the chronology. So not as successful as I hoped, though I’m glad I read it. Rating 3/5 stars.

Then I finished Victoria Lee’s A Lesson In Vengeance. This was set in an American preparatory/finishing school for the wealthy, and became a story of past mysteries, occult history and a thriller. Frustratingly though I found it disappointing overall. The story involves much of the past history of the school, but this aspect wasn’t as well developed and integrated into the plot as it should have been. There was a satisfying unease throughout, of a is there / isn’t there series of ghostly hauntings. I was genuinely uncomfortable at times walking around the house in the night after reading! And while the book didn’t take the route I expected, where it did go was both unsatisfying, prolonged, and ultimately at the end predictable. So thumbs up for idea and to an extent atmosphere, even if the spooks didn’t reach the levels they should have done. But thumbs down for the plot and overall effect. Rating 2/5 stars.
vivdunstan: Photo of some of my books (books)
Current main reading as of end of February 2022.

I’ve newly started the dark academia novel A Lesson In Vengeance while still finishing off the vasculitis book club’s choice of the month, Us by David Nicholls. The latter is entertaining enough, though overlong for my tastes. But I will finish it.

I’ve newly started the Treasure Palaces collection of short essays about museums and galleries around the world. I’m particularly keen to read its penultimate one about the ABBA Museum in Stockholm, where we had a marvellous time. But I’m going to read in order. There are 24 essays.

Rachel Clarke’s junior doctor tale is a good read, but frustratingly jumps about in the chronology far more than necessary or helpful.

I’m keen to finish Jim Crumley’s book about Autumn, though I have major issues with some of his writing and frequent self plagiarism. He’s a nature writer from Dundee.

And I am still slowly making my way through Loren Wiseman’s collection of Traveller RPG club magazine editorials, which is very enjoyable, even for someone who has never played or read Traveller RPG. But best savoured.

vivdunstan: Photo of some of my books (reading)
Current main reading as of mid February 2022. Continuing the Wheel of Time book 2, Steve McNeil’s video games history and a marvellous Louis Wain cats book. New reads for me are a history of the Hermitage in St Petersburg, short novel Strange Weather in Tokyo, and Rachel Clarke’s junior Doctor story.

I generally like to have a couple of novels on the go at once, one usually gargantuan, so that’s why I’ve got the Japanese book newly started alongside the (admittedly nearly finished) fantasy novel. I also like a lot of non fiction books.

Normally I read in a gargantuan font on my Kindle, but two of the above books are coffee table sized printed ones i.e. the cats and Hermitage books. But both are very heavy on pictures and very light on text, so they’re just about manageable for me. Both gorgeous books anyway.

I have nearly finished the Wheel of Time book but don’t expect to go straight on to book 3. But I am likely to read another whopper of a novel next.

vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
Thought I should order in some more repeat prescriptions. Checked my spreadsheet, and the online ordering record. And then ordered 12 different drugs. Eek! I currently have 16 things on my repeat prescription, which is quite a drop from in the past. That's why I need a spreadsheet though! With this many things, all running out at different times, it makes sense to order them in together when convenient. As a Scot I don't have to pay anything at all for my repeat prescriptions, not even a prepayment certificate. I am phenomenally grateful to the NHS for supplying me with these vital medicines, for 22 years now. A mix of drugs, some controlling my auto immune neurological disease (especially steroids and another immunosuppression drug), some to help with symptoms I have (e.g. bladder incontinence), some to help with things I've developed from the disease (e.g. osteoporosis and generalised anxiety disorder), and some to help with side effects of the other drugs (e.g. nausea and diarrhoea). But all gratefully received, and very much appreciated. I dread to think how I'd manage in a different non public health system. Thank goodness for the NHS.

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vivdunstan: Part of own photo taken in local university botanic gardens. Tree trunks rise atmospherically, throwing shadows from the sun on the ground. (Default)
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