vivdunstan: Photo of me from Melrose Grammar School plus NHS thanks (nhs)
vivdunstan ([personal profile] vivdunstan) wrote2024-02-29 10:36 am

Rare Disease Day 2024

It's Rare Disease Day again, and time to reshare my experiences with a 1 in a million (literally!) progressive neurological disease, cerebral vasculitis. I've written a lot about it before, but I think my "Implications of living with a rare disease" blog post is a good one, which also addresses the experiences of other people living with other rare diseases.