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Monday, May 29th, 2017 07:58 am
Link here. This is the type of disease I have. Mine is in my brain, and one of the rarest types - incidence about 1-2 cases per million people per year. Treatment is long-term steroids and immunosuppression, and chemotherapy is typically needed. I've had masses since falling ill aged 22 in 1994. My form is very MS-like.
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Wednesday, May 24th, 2017 08:29 am
Struggling again with my neurological disease, and this blog post from a few years ago sums up how I'm feeling right now.
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Monday, May 1st, 2017 09:26 pm
For vasculitis awareness month here's another link to my blog post about "Implications of living with a rare disease".
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Sunday, March 4th, 2012 06:07 pm
I've mentioned my reading problems here a lot, and how pleased I have been to overcome them.

I've just written a lengthy blog about this on the Vasculitis UK discussion board, prompted by a question that came through Twitter today to me about overcoming reading problems caused by brain damage.

I fell ill in 1994, initially misdiagnosed with ME, but rediagnosed in late 1997 with cerebral vasculitis, a progressive incurable neurological disease that causes lots of strokes, causing cumulative and irreversible brain damage and subsequent disabilities.
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